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T13 Plan Pages | Birth Plan | Plan of Care

Trisomy 13 PLANNING PAGES
 
A BIRTH PLAN is set of guidelines for care of infant and child during labor and delivery. 
 
In the case of a Trisomy 13 child, a birth plan has some degree of a plan of care due to the high mortality of these little ones.  But after the birth, there is change in the flow from mom and infant, to mom - and infant. 
 

A PLAN OF CARE is a “snapshot” of decisions that have been made for the care of a patient, typically in a grave situation, given a particular set of circumstances. 

 

For adults, we have something called, Advanced Directives or other tools.  Minors, a/k/a children under the age of 18 years, do not have such tools.  They have parents!  It is up to the parents to communicate the desires for their child’s Plan of Care given a grave situation. 

 

These sections were designed for Trisomy 13 parents and discuss from our personal experience what and how parents need to communicate to their child’s physicians. 

for your Trisomy 13 Child

 

1 Cor 3:16
   Do you not know that you are the temple of God,
   and that the Spirit of God dwells in you?
 
Psalm 90:12
   Lord, Make us know the shortess of our life
   that we may gain wisdom of heart.
 
Isaiah 43:4
You are precious in my eyes
 
A human life may sometimes look too short to be worth much, but God, who sees the works of his hands from the perspective of enduring love, clothes even the passing wildflowers with splendor.  We are only dust - but beloved dust! 
 
Intercessions
The Lord Jesus Christ took on our fragile flesh and made of it a temple for the living God.  With joyful confidence, let us pray:
 
Response:  Let your favor be upon us
O God, we are the works of your hands:
- shape us in the image of Christ our Lord
R
O God, we are but a moment in the worlds history:
- teach us to store up treasure in heaven by the good we do on earth
R
O God, we fear mortality we cannot cure:
- grant insight and faith to all those who do the work of the work of medical research
R
O God, we are saddened by the death of those we love:
- bring them into everlasting joy of your presence
R
Personal Intentions
Our Father ...
 
O God of wisdom and love, you have made us as fragile as the flowers of the field, yet you have made us strong in the hope of life everlasting.  Teach us to see this day as a gift, that we may live it for your glory and render it back to you in praise when evening falls, through Jesus Christ, your Son and our Lord, who lives and reigns with you and the Holy Spirit, one God for ever and ever. Amen.
 

Preparing for a

 

 

Mathew 13:47-53
They put what is good into buckets,
what is bad they throw away.
 
1 Corinthians 1:26-29
Consider your own calling, brothers.  Not many of you were wise by human standards, not many were powerful, not many were of noble birth.  Rather, God chose the foolish of the world to shame the wise, and God chose the weak of the world to shame the strong, and God chose the lowly and despised of the world, those who count for nothing, to reduce to nothing those who are for something, so that no human being might boast before God.
 
He has looked upon his lowly servant!  Luke 1:48
 

Peace and Blessings to all, Let me know if you want to talk or if you need help in any of these matters.  I am available to help inside the U.S. via telephone, e-mail or visits within the Greater Atlanta Area.  I can be contacted via e-mail for support in Trisomy 13 Planning.  For more info, visit our parent site at http://gregoryarritola.tripod.com
 
 

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